A virtual photo exhibition titled “During COVID, Sickle Cell Disease Continues,” will take place from 6 p.m. to 7:15 p.m., Friday, June 18, via Zoom. The event is free and open to the public.
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The exhibition will feature select photographs taken by young adults living with sickle cell disease to give attendees a better understanding of the impact the COVID-19 pandemic has had on those with sickle cell disease. Sickle cell disease is an inherited group of disorders that cause red blood cells to become misshapen and break down, which leaves a shortage of healthy red blood cells and impeded blood flow causing pain, infections, and fatigue.
“This event, which will happen on the eve of World Sickle Cell Day, is an important opportunity for both sickle cell warriors to share their stories and for those viewing their powerful images to gain a different perspective of those living with sickle cell disease and how they have been uniquely affected during the pandemic,” said Dr. Dora Clayton-Jones, assistant professor in the College of Nursing and president of the International Association of Sickle Cell Nurses and Professional Associates.
The event is organized through Photovoice Project — a community-based research effort to give a voice to young adults affected by sickle cell disease.
Sharonda Sikes will lead the event. Sikes is the founder and lead advocate of The Red Chair Project, an organization that provides support, education, and empowerment for those living with sickle cell disease, as well as their families and communities. Over the years, Sikes has hosted numerous concerts, photo shoots and other projects to increase sickle cell awareness.