‘Harmony 4 Hope’ event highlights rare disease stories, Feb. 27

The College of Health Sciences will host “Harmony 4 Hope: Rare Storytellers” on Thursday, Feb. 27, from 5:30 p.m. to 7:30 p.m. in the AMU, Room 163.

Harmony 4 Hope unites and amplifies the voices of the 350 million people worldwide collectively impacted by 7,000 rare diseases. At this event, participants will have the opportunity to hear stories directly from patients, empowering and inspiring the next generation of physicians, researchers and healthcare professionals.

Rare Disease storytellers include:

  • Linda Bevec, passionate parent advocate and inspiring storyteller. Bevec will share her family’s Rare Disease journey with Autorecessive Polycystic Kidney Disease/Congenital Hepatic Fibrosis and share how music has uplifted and inspired them through difficult times.
  • Cameron James, singer and songwriter, joins H4H from Nashville to share her story and her music. James’ songs have been used in international commercials as well as for promos for the hit ABC show “Quantico.” Her family’s journey with Atypical Hemolytic Uremic Syndrome has directly impacted James’ music — she loves inspiring others with a message of hope and sharing how she’s gone from fear to faith.

This event is free and open to the public. Complimentary hors d’oeurvres and refreshments will be served.

Register via Eventbrite.